You are getting better?

People greet me and see how my body has changed because of my dedication to the workouts and the new lifestyle eating habits, and they compliment me saying I look good. You mean, I joke, accept for this tube in my nose.

Some moments in the day I feel I am getting better, and then I start coughing and can’t stop, and I think, will I cough to death right here. Will this be the moment I lose my life? It sounds dramatic, but I have thought these things on more than one occasion. If I had a pain in my side, say a reoccurring thing that I thought I might need to get checked out, then I would have time. But a cough or a ceasing of breath, well how long do you actually have? Do I have time to unlock the door and call an ambulance? Do I have time for the ambulance to get here? How long can I go without breath and come out on the other end without brain damage? These are the things I think. I have had two friends who have died alone in this way.

The second opinion pulmonologist at UT has taken away the term idiopathic from the diagnosis of Interstitial lung disease.  This new diagnosis I assume takes my 3-5 years to live off of the table.  That first diagnosis had thrown me for a loop. Today, when I heard the speech of Jack Bailey, I was so impressed, and I cried.It made me think of so much. I related to his diagnosis and want to live, but at the same time I thought he is only 18- I’m 57.  If there are only a certain amount of years allocated, and I could give mine up to someone else, I’d give mine to him. Sure I have more I want to do, I want to be with my daughter and granddaughter, but I have lived a long life.

I have always said that I have done more because of those who have come before me.  Thank you to all of those who lifted me up.

When I die, I hope people will remember me in ways that this young man talks about. Striving valiantly and having great devotion to strive to dare greatly!

Daring Greatly,
Pusche

Give me moral strength. Don’t let me give up, even if this upcoming journey will be difficult.

“Let others lead small lives, but not you. Let others argue over small things, but not you. Let others cry over small hurts, but not you. Let others leave their future in someone else’s hands, but not you.” Jim Rohn

Help me to be “Galant be great, be gracious, and be grateful for the opportunities that I have. ”

“Let’s be passionately dedicated to short-term goals. Forget about long-term dreams lets be passionately dedicated to short-term goals—micro ambitious. Work with passion and pride with what is in front of us. We don’t know where we might end up or when it might end up. ”  Jake Bailey

Pusche

 

 

 

Possiblities

Through my entire life, I have always seen the possibilities.  I meet people, and they may struggle, but I can see their potential and all of their possibilities. In my own life, I often wake up and expect incredible things to happen. I remember in the 70’s there was a saying “Expect a Miracle.” That is an ingrained thing in me.

This expecting possibilities is interesting. Of course, I do a lot of work to make things happen in my life. I don’t just sit back and say, “Alright now, I’m ready-God, bless me.” No, I have several irons in the fire, I’m active in stirring things up, and frankly, I just believe great things are going to happen, and they do.

My life is so absolutely full. Really it is. It is never boring. When I call my sister on the phone I’ll ask her what is happening, and she says a few things, but then I spend 45 minutes relaying what is happening in my life. There might be a new commission or a possibility of one or this great lesson learned, or some marketing or publicity that I’m doing. My life is truly full and exciting.

I hear people say to me, “I don’t see you dying from this. I see you getting better.” And I think, “from your mouth to God’s ears.”  But it is time for me to see the health possibilities.  I have worked so hard at my diet and my commitment to exercise that I must channel that feeling of possibilities into my health as well as my everyday life.

Feather Pillows And Other Fluff in Stuff

 

I had to get rid of my feather pillow. FYI- feather pillows and down comforters are linked to interstitial lung disease. How will I ever find something as mushy as a feather pillow? Anyone else like a mushy pillow and what do you have? Oh, and by the way, the comfort is not to die for!

This is what I have heard from so many already.This article from Catalan News states that feather pillows can cause idiopathic pulmonary fibrosis.  Pay attention that one has a lifespan of 3-5 years. The Daily Mail writes  about other icky stuff in pillows. And this journal article talks aboutFeather duvet lung (FDL). I have used hypoallergenic pillow covers religiously for several years now.  I will swear by those. But if there is a chance that a pillow can take away any more air from my lungs, it is out of here.

What did others suggest?  I have not researched all of these and cannot recommend one over the other or to say which is a safer alternative.
One person suggested Kapok pillow.
Another suggested bamboo pillows.  
Another suggested a Tempurpedic pillow
Several people suggested the pricey My Pillow 

I ordered My Pillow. I’ll let you know how it goes.